Fibromyalgia Awareness

I haven’t blogged for months now and I really should try to get back into the swing of things again. My last blog was nearly 3 months ago and a lot has happened in those 3 months. Mainly I’ve been very ill and had a spell in hospital. I’ve also had a wall knocked down between my kitchen and dining room and all the mess and upheaval that comes with it. And of course, I’ve had my wedding to prepare for. So all in all blogging hasn’t really made my list. 

The biggest problem has been my health. I have various autoimmune conditions, including psoriatic arthritis (not the wear and tear type that your granny might have but an autoimmune type that destroys my joints, tendons, skin and internal organs) and I also have severe fibromyalgia. My illness used to be what was called an invisible illness but in the last year has become painfully visible with me having to use a wheelchair outside the house. That was the biggest pill to swallow and let me tell you, I have some pretty big pills (and pain patches and injections). 

I have been so ill recently that I’ve had a week in hospital when I couldn’t walk and had joints syringed out and flushed. I am mobile again but not hugely. It has been a big worry the last few months as to whether I will be walking down the aisle next week or wheeling down the aisle. At this point I think I will be walking but don’t expect it to be elegant. I have no idea if I will be able to do the most basic of first dances. I’ll have to wait and see what happens on the day as this disease is hugely variable. Thankfully, the wedding isn’t that important to either me or Mr Ty Siriol. We are both mature enough to see that the marriage is the important thing. Also, if I get down the aisle in this state and he says, ‘I do’, then I’m holding him to it! Even so, I can’t count how many times we’ve said that we should have eloped. I guess you’ll find out how it goes after the event when I have some pics to share with you. 

It was rather ironic that I was really ill this year and completely wiped on Fibromyalgia Awareness Day (12th May). I turned my FB page purple for the month of May in its honor and to try to raise awareness. In addition, I put a purple ring dish up for auction for Fibroduck Foundation (UK based charity researching into Fibromyalgia). Here’s the dish that when for a nice sum.  

Donated by Ty Siriol to an auction for Fibromyalgia research.

I also bid on several items and won two of them. Ty Siriol also made a donation to Fibroduck. 

Here’s my profile and some of my awareness pics that I used. 

If you or someone you know is a fibro-warrior, then please feel free to share this so they can find lots of useful information and support.

I feel like I should have posted this weeks ago but then again, those who are affected by this awful disease live it each and every day so it doesn’t really matter when I post it. 

Thank you for reading,
Cath xx

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